[PND52] Validation of Spanish Version of the Huntington Clinical Self-Reported Instrument (H-CSRI)
2012 Value in health
Khemiri, A. | Clay, E. | Trigo, P. | Yebenes, J. | Dorey, J. | Toumi, M. |
Huntington Disease, patient reported outcomes,
The Huntington Clinical Self-Reported Instrument (H-CSRI) is the first subjective clinimetric scale for patients with Huntington’s disease (HD). Such an instrument offers the advantage of allowing a remote follow-up, and collection of information on the development of motor, functional and behavioural symptoms of HD, perceived by the patients themselves. The objective of this study was to adapt and cross-culturally validate the H-CSRI for Spain.