[PND42] Validation Of The United States Huntington’s Disease Quality Of Life Battery For Carers
2014 Value in health
Khemiri, A. | Clay, E. | Dorey, J. | Auquier, P. | Toumi, M. |
Disease, Quality of Life, United States,
Huntington’s disease (HD) is a rare neurodegenerative disease leading to sustained disability for patients and poor quality of life (QoL) for patients as well as caregivers. This study, conducted in US as a part of an international survey, investigated a disease-specific QoL instrument, the HD QoL Battery for Carers (HDQoL-C).