[PMH21] Quality of life of non-institutional caregivers of schizophrenic patients: contribution of qualitative interviews to questionnaire generation

[PMH21] Quality of life of non-institutional caregivers of schizophrenic patients: contribution of qualitative interviews to questionnaire generation

2001 Value in health

Auquier, P. | Simeoni, MC. | Azorin, JM. | Lancon, C. | Toumi, M. | Volume: 4, Issue: 2, Pages: 147, Caregivers, Quality of Life, Schizophrenia,

OBJECTIVES: The detrimental effects of hospitalisation
and developments in psychopharmaceutical, psychotherapeutic
and social treatments led to deinstitutionalization.
Proxies of patients, relatives or friends, have had to
learn to cope with caregiving tasks. Facilitating the coping
of the caregivers should ensure a better quality of
caregiving, notably in terms of therapeutical observance.
An exhaustive literature review found 9 instruments for
caregivers of schizophrenic patients. Five of them are self
administered, but none of those covering mental, psychological
and social fields have been widely validated and
accepted within the scientific community, none are available
in French. We report the first step of development of
a specific, multidimensional, self-administered instrument
measuring the quality of life of non-institutional
caregivers of schizophrenic patients. METHODS: Faceto-face
interviews were conducted with non-institutional
caregivers of schizophrenic patients. Their content was
analysed to generate a large number of candidate items
covering all-important aspects of caregivers’ quality of
life. Eighteen interviews were performed: 11 mothers and
7 fathers aged from 48 years to 71. RESULTS: Content
analysis identified topics covering mental (worrying,
emotional over-involvement, and suffering, guilt, fair of
stigma, of future, loneliness, disillusion, anxiety, feeling
of usefulness, self esteem . . . ) physical (fatigue, disruption
of sleep . . . ) and social (relationships with the patient,
friends, relatives, health workers, occupation, leisure
. . . ) fields. Negative as well as positive impact was
identified. CONCLUSIONS: These results were compared
to the domains described in the literature. This step led to
the generation of about 100 questions and the validity of
this questionnaire will be studied on 400 caregivers.

https://www.doi.org/10.1046/j.1524-4733.2001.40202-207.x